Working with me is hard. Super hard. There’s a long line of people who will tell you the same. Despite the hard journey people walk with me, if things go wrong, someone has a shit day, maybe something in the programme needs tweaking or someone simply doesn’t understand something… I’m there to deal with it. For those that come for a workshop, they are already at a big disadvantage as they only see me for 3 hours! Although I’m only at the end of the phone, and they have my services until they don’t need me… It’s on them to keep moving forward. To get out of bed every morning and do the things you must do, but not necessarily want to do it, is HARD. So, for Jonny to achieve what he did, by himself, is an absolute testament that if you want it, you get up everyday and you work for it.
Dozen of articles. Improve your lifestyle now!
As another year comes to a close, I take a trip down memory lane and revisit some of the amazing people I have worked with this year. I have a look at how much they have changed their lives, and how 2017 has been in general. I’ll take a look at the various projects I embarked on and take a look at the ups and downs of this year. This is also the second full year I have taken “The Fibro Guy ” to social media. I’m still blown away by all the support and positive comments, it’s truly appreciated!
2017 has been incredible, but it definitely came at a cost. This year has been one of the most exhausting, both physically and mentally, I’ve had in a very long time!
Its normally me who writes these kind of blogs on my clients, but when I asked Heather if she would write a paragraph, she pretty much wrote the whole blog for me 😀 Although not every client will make a total, full Fibro recovery, as some have issues such as bakers cysts, some actually turn out to be fairly deep into the EDS spectrum and other things can be present that make it very hard. Age I believe is a big part of it, as well as a persons own beliefs, however there is not a single person reading this who couldn’t help themselves to creating a better standard of living. Read more
*Warning* *This blog contains some graphic pictures*
Following on from the “Pain is for protection, not damage” blog, I found some brilliant examples to help show you how pain can exist with or without damage. Pain is an output of the brain when you subconsciously deem that pain is an adequate response to the inputs you receive. Remember though, that what we believe, past experiences, how you feel that day, who you are with, why you are doing what you are doing and how you are doing it, can all change how you process the various inputs of the world and ultimately, cause things that you used to do, to now become painful….. Read more
So…..this is probably going to be the last volunteer post you will see from me. I’m planning on expansion next year, so if there are more volunteer posts it won’t be myself running them.
I’ve read through uncountable “woe is me” Fibro articles on the net and in the press recently, all of which get tremendous engagement. However, should you post a recovery story, its apparent that they must not of had Fibro or some other excuse comes from people.
Once you remove the huge percentage of people with Fibro who are actually undiagnosed Ehlers-danlos sufferers, you are left with a group of people who can make full recoveries. If that upsets you reading this and doesn’t fire something up inside of you to take your life back, then unfortunately, you are part of the problem. Just look at the current Lady Ga Ga drama; blatantly EDS, just watch her music videos.
So as someone who doesn’t like to not be busy, I’m embarking on a new project.
I want someone with Fibromyalgia to help me. I want to film a mini documentary of someone’s recovery. So to preempt the “well they mustn’t have been that bad” or “they didn’t have Fibro then” comments…. I would like someone with severe symptoms.
If you have:
-A fibromyalgia only diagnosis
-Require a wheelchair or sticks to move about
-Claim to have tried everything else
-Are in constant pain
-Can attend the studio (Newcastle) twice per week, for 10 weeks
-Are fully committed to the twice weekly sessions and home regime
-Are willing to come in for an interview
-Are willing to be filmed throughout the 10 weeks and keep a home video diary
Then send an email to Adam.firstname.lastname@example.org
This years success story’s have been pumped out fast and furious. This is because I have been incredibly strict in who I have worked 1:1 this year. So, if you send that email please understand a few things:
-You will hurt through parts of the programme.
-If you do not follow homework, are late or fail to do the foundation work, you are out the door.
-You will have to let go of a lot of beliefs about what you think Fibro actually is.
The last client in a wheel chair was Lisa, who took around 5 weeks to go from a wheel chair to running (see here –http://www.chroniclelive.co.uk/news/north-east-news/how-wheelchair-bound-woman-suddenly-13361028)
With press articles and indeed what I post on the page, you guys only see the beginning and the end product. You miss so much of the hard work, dedication and stress that goes on in the background. Once this documentary is finished it will be available to watch for free on the YouTube channel. Like I said earlier, so much negativity surrounds chronic pain. I want something to inspire people, something that shows people it’s possible.
People make full recoveries everyday, not just my guys, but all around the world. But, if you are blind to it, you will never see it is possible.
So for everyone who has said they have tried everything, that they would do “anything” to live a different life………the volunteer programme is open.
Oh, this week had been one of my favourites this year and reaffirms just how much I love my job. This is the week I finally got to work with an old workshop client for a week straight. The results from a little encouragement, a little guidance and a whole lot of effort on her part, has yielded incredible results! Read more
I met Bridget a while back, she is a young woman who had been Rowing at an elite level for almost 7 years. She had picked up a fair few injuries due to her hyper mobile joints and eventually, she could no longer push through the pain.
Alison came through doors with something I’d never even heard of before…..Parsonage Turner Syndrome. Considering we both had no idea what to expect working together, but she’s actually doing incredibly well! Read more
If everything changes, why would you be any different? The truth is you’re not! And when it comes to being hypermobile, it’s kind of important to realise what changes actually matter. Let’s start this part with a fact! Did you know a banana is around 74% water?
When you first came into the world all those years ago, you came in 1% wetter than a banana. So at around 75% water, you were pretty wet. However, in just 0ne year, you dropped down to about 65% water. By the time you entered adulthood you are around 60% if you are male or 55% if you are female. And by the time you become “officially” elderly, water will make up around half of your body. If one thing is certain in life, it’s that you are slowly drying, see what I did there :-). But, why does this matter? Because if you’re hypermobile, it’s going to affect you.
Over many years I have been lucky enough to work with many amazing people, from those with Fibromyalgia to those with various neurological problems. But, out of all the people that walk through my door with a fibromyalgia only diagnosis, I would say around 50%-60% actually turn out to be on the Hypermobility spectrum or have Ehler-danlos syndrome. Now for those folks with hyper lax tissue, life can become very difficult, very fast. With the change in collagen that the gene mutation in those with hypermobilty causes, and the fact that collagen is a hugely abundant and incredibly important tissue in the body, it brings about a lot of systemic problems. I’ve seen a lot of hypermobile folk in my career and I’ve seen some pretty amazing results that hard work, determination and a little consistency can bring about. Some of them even made the press like Kriss, Lauren and Lisa.
As another year comes to a close, I take a trip down memory lane and revisit some of the amazing people I have worked with …