Fibromyalgia Awareness DVD Day 1
Today we started on our journey; our journey to raise awareness of something most people can’t pronounce let alone begin to understand what it is..I’m talking of course about Fibromyalgia….
Friday night I had received a message from Cheryl telling me she was in bed with a massive cluster tick migraine. Due to film the next day, I prayed she would get better, and when on Saturday morning I received a text from Richie, Cheryl’s husband, that she couldn’t even get her head off the pillow I feared for the worst.
I arrived at the house to find the camera crew already there talking to Richie. After talking with Cheryl and seeing the state she was in, left me one choice….call in magic hands.
I called Jan Ware the massage therapist and asked if she could come round and try and relive some of the pressure from Cheryl’s head and try a little reflexology on her hands.
The camera crews director Adam had never really seen the true extent of Fibromyalgia so when he saw the state of Cheryl it came as some what of a shock to him….but not as big a shock as 20 minutes later when Cheryl was completely fine after Jans magic hands had worked the magic.
Nobody could believe the difference, and the camera crew looked shocked…..this meant that we could film..and so we did.
Interviewing Richie I asked him what fibromyalgia was to him, and I guess I wasn’t really ready for his response.
“Fibromyalgia took my fun loving party girl and turned her into some one who needed to be cared for”
We have had a long journey together Cheryl and I, and we have made some amazing progress. I am so excited to finally be filming the awareness documentary and to finally raise the much needed awareness.
After we had interviewed everyone we headed back to the studio to talk to me about how I started on my own chronic pain journey and why I spend my life trying to help those in pain.
If you wish to share your own story for DVD, I do still need lots more 2-5 minute videos on what fibromyalgia (or any other chronic pain/fatigue syndrome) is to you. It can be about anything to do with your condition, from doctors to pain clinics to what triggered it.
I am going to these from videos in the final DVD documentary.
So please send your videos to Adam.firstname.lastname@example.org and any queries you might have to Seren.email@example.com
The next filming date is quickly approaching and we are looking to film the entire exercise DVD in one day. The exercise DVD will come free with the documentary and is a means for any one, regardless of ability, to finally exercise safely.
I have over 5 years of working with those with fibromyalgia, and other illnesses including EDS, and helping them build themselves up and to being able to exercise.
Oh and we finaly thought of a name….. Invisible Monster.
Thank you to every one who got in touch with title names.