POTS and Salt: What the Science Actually Says
If you live with Postural Orthostatic Tachycardia Syndrome then you already know that standing up is not always as easy as it sounds. POTS is a form of dysautonomia where the heart rate will increase abnormally on standing, often brings with it dizziness, palpitations, fatigue and that all too familiar brain fog along with it […]
Why the Beighton Score Matters More Than It Should
If you’ve spent any time in the hypermobility world, you’ve probably heard the same question more than once. “What’s your Beighton score?” It’s become almost a badge. A number that seems to decide whether your symptoms are valid, whether you qualify for further investigation, orx whether you’re sent home with a polite smile and a […]
Brain Fog in EDS, POTS and Long COVID: Causes and Practical Ways to Cope
If you live with Ehlers Danlos syndrome (EDS), hypermobility spectrum disorder (HSD), POTS, MCAS, ME/CFS, or long COVID, there is a good chance you already know exactly what people mean when they talk about brain fog (1–4). It is that strange heavy feeling where your thoughts feel padded out, like they are moving through treacle, […]
Hypermobility, Ehlers-Danlos Syndrome, and Your Pelvic Floor: A Comprehensive Guide
If you’ve ever been described as or told you are “double jointed” unusually bendy or hypermobile this article is written with you in mind. For a long time, hypermobility has been treated as a party trick or at best a joint issue that only really matters, if something dislocates. What often gets missed is how […]
Internal Tibial Rotation Exercises for Hypermobility: Improve Knee & Ankle Stability
If your knees feel like they’re always one step behind the rest of your body, or your ankles like to give way even when you’re standing still, then you’re in the right place. It’s something we see all the time. Wobbly knees, ankles that roll for no reason. A sense that no matter how much […]
What Causes chronic pain in Fibromyalgia and Hypermobility
The Nervous System’s Role in Pain If you’ve ever flinched at the sound of someone chewing, struggled with bright lights in a shop, or felt like certain fabrics make your skin crawl, it’s completely understandable. For those dealing with fibromyalgia or hypermobility, these kinds of sensory experiences can become overwhelming, even painful. And what’s more […]
POTS and Exercise: The First Step Everyone Misses
If you’ve been living with POTS for any length of time, you’ve probably become an unwilling expert in unpredictability. One day you might be able to potter around the house or even manage a light walk, and the next you find yourself flattened by a kind of exhaustion that seems to seep into every cell. […]
The Missing Link Between Breathlessness, Fatigue, and Chronic Pain: Understanding CO₂ Tolerance
If you’ve been living with chronic pain, relentless fatigue, or that strange feeling of being both wired and tired at the same time, then chances are, you’ve already tried everything under the sun in search of relief. The supplements, the pacing strategies, the stretching routines, the endless body scans and breathing apps. And yet, despite […]
What is Mast Cell Activation Syndrome?
Let’s talk about mast cells, because frankly, it’s something that doesn’t get spoken about, when it really should be. If you’ve never heard of them before, that’s completely understandable, as these immune cells don’t get much airtime in most conversations, but when they start misbehaving, the effects can be profound and in some cases, absolutely […]
Breakthrough For Ehlers Danlos Syndrome and Endometriosis
If you live with endometriosis, you already know the drill. Debilitating period pain, exhaustion that knocks you sideways, nausea, bloating, heavy bleeding, some days, it feels like your body is actively working against you. And when it comes to treatment? Well, that’s often where the real frustration begins. Many people spend years, sometimes decades, trying different treatments. […]
Does EDS get worse as you age?
Aging with Ehlers-Danlos Syndrome (EDS) is a bit of a paradox. For some, hypermobility decreases over time as we retain less and less water, but that doesn’t always mean things get easier. Instead, pain, fatigue, and the many systemic complications often become more prominent in our lives. Like many of our clients, you may have […]
Can Ehlers Danlos Syndrome Cause Weight Gain/Loss?
If you’ve ever felt like your body is working against you when it comes to Ehlers Danlos syndrome and weight gain, then you’re not alone. I’ve worked with countless people with Ehlers-Danlos Syndrome (EDS) in a rehab capacity, and it’s astonishing how many noticed their weight creeping up, or simply struggled to stay stable, despite eating well and doing […]