If you want a subject that will make your head spin, then welcome to Part 3- Stretching the truth. Why can some people do it and feel great, whilst others get injured? Is yoga the devil’s work or is the devil in the details? The myths surrounding hypermobility, in general, are shocking and things only get more confusing when we throw stretching into the mix!….. Read more
Tag: Ehlers-Danlos syndrome
*Warning* *This blog contains some graphic pictures*
Following on from the “Pain is for protection, not damage” blog, I found some brilliant examples to help show you how pain can exist with or without damage. Pain is an output of the brain when you subconsciously deem that pain is an adequate response to the inputs you receive. Remember though, that what we believe, past experiences, how you feel that day, who you are with, why you are doing what you are doing and how you are doing it, can all change how you process the various inputs of the world and ultimately, cause things that you used to do, to now become painful….. Read more
Over many years I have been lucky enough to work with many amazing people, from those with Fibromyalgia to those with various neurological problems. But, out of all the people that walk through my door with a fibromyalgia only diagnosis, I would say around 50%-60% actually turn out to be on the Hypermobility spectrum or have Ehler-danlos syndrome. Now for those folks with hyper lax tissue, life can become very difficult, very fast. With the change in collagen that the gene mutation in those with hypermobilty causes, and the fact that collagen is a hugely abundant and incredibly important tissue in the body, it brings about a lot of systemic problems. I’ve seen a lot of hypermobile folk in my career and I’ve seen some pretty amazing results that hard work, determination and a little consistency can bring about. Some of them even made the press like Kriss, Lauren and Lisa.
I’m going to tell you a story. It’s going to open up how you perceive the world, it is going to make you question everything and maybe, just maybe, let you find your road to recovery…. Alternately, I’m about to really piss you off but I’m willing to take that risk! Read more
So… you may remember about 10 weeks ago I put out a post asking for volunteers. I had been busy designing an 8 week online programme designed for Ehlers-Danlos syndrome and associated connective tissue disorders. The whole programme was to be done via secure private video link wherein the volunteers needed to follow along with the videos exactly as they where presented. I received a huge response and I eventually ended up with around 30 volunteers, who where divided into Group A (who have now finished) and Group B (who started 4 weeks later)
Details on Group A can be found below. Group B are almost finished and have experienced even better results than group A, as I have been able to tweak things gauging off group A feedback, essentially running a version 1.1 at the same time. I will, when group B finish, post their results.
My aim for this programme is to see if “some” of the results I have working with individuals 1:1, could be attained without me every meeting an individual. Using the past experience of the countless people with EDS I have seen over the years, I put together an online video instruction programme. Obviously I wasn’t expecting miracles, but despite everything I ended up with a MASSIVE 90% success rate (success in this context means reduced fatigue, pain reduced down to nearly nil, stabilised pevlis’ and subluxations and dislocations reduced). However, all participants reported feeling better than when they started.
Out of the 30 people;-
*4 people failed to start the foundation exercises on time and were, as previously told they would be, removed from the trial.
*3 went silent, not responding to messages and I removed them from the trial
*2 missed the first session and were removed from the course.
The volunteers in general were very varied in symptoms and complaints, 3 member’s of group B started the course on crutches and whilst they have not yet reached the end of the programme, are already off them. Several of the participants suffered from POTS and I was even lucky enough to have a Regional Coordinator for the Ehlers-Danlos UK charity take part in the programme. For both groups I created 2 private Facebook groups so participants could get to know one another and also allow me to post the video sessions as required. I have attached some screen shots of our 8 week journey together.
Group A – The results were far better than I could have imagined! In group A, 9/10 people reached the personal targets I had hoped for them and saw a huge reduction in pain and increased energy. Although 1 participant did not see the reduction in pain and increase in energy like we hoped, she did report feeling better than before she started and had the following to say during the post trial feedback.
More people than I care to remember over the years have suffered with POTS, especially those with Ehlers-Danlos syndrome. Simple interventions I have used with clients over the years has seen many clients return back to work and increased their standards of living. Let’s take a look at POTs, its mechanism and give you something to take away, use and hopefully help yourself. Read more
Hey guys, as you know I am always making minor changes to my programmes and every once in a while, I offer the programmes for free to test how well they work. I have a few projects lined up for next year and in particular, an Ehlers-Danlos project. As many of you know I can only help so much when it comes to the gastric and other problems that Hyper Lax connective tissue can cause, but when it comes to structural problems, mobility and pain I can help a lot. My programmes are well known and have even been in the press on a few occasions http://www.dailymail.co.uk/health/article-3528507/Woman-cracked-rib-sneezing-broke-ankle-wearing-heels-WEIGHTLIFTING-stop-joints-dislocating-times-day.html Read more
As someone who is a huge advocate of exercise, the title of this may seem confusing. I have seen countless people over the years with all kinds of chronic conditions. I’ve had EDS clients bound to wheelchairs walking in a matter of weeks, Fibromyalgia clients return back to work after a 15 year break and CFS/ME clients fully recover and return back to their old lives. How I work with the CFS/ME population is vastly different to the other groups and this current method we have of prescribing everyone with graded exercise is by far the most damaging thing a “professional” can do, and it must stop. Read more
Earlier this year I had the pleasure of talking via Skype to Dr Jose Montoya professor of medicine and head of the Chronic fatigue syndrome research team at Stanford university, and it seems to me that they are taking big steps forward to discovering a clean cut tool to diagnose CFS/ME. Read more
You may remember that before Christmas I asked for a few volunteers to help me trial a few changes to some of my programmes. One volunteer was an amazing young woman named Lizzie. For those of you who have read Lizzie’s story, you can find her update at the bottom of the page. For those of you new to the page……enjoy!
I’ve had a lot of emails lately asking if there will be any more road shows this year. …