If everything changes, why would you be any different? The truth is you’re not! And when it comes to being hypermobile, it’s kind of important to realise what changes actually matter. Let’s start this part with a fact! Did you know a banana is around 74% water?
When you first came into the world all those years ago, you came in 1% wetter than a banana. So at around 75% water, you were pretty wet. However, in just 0ne year, you dropped down to about 65% water. By the time you entered adulthood you are around 60% if you are male or 55% if you are female. And by the time you become “officially” elderly, water will make up around half of your body. If one thing is certain in life, it’s that you are slowly drying, see what I did there :-). But, why does this matter? Because if you’re hypermobile, it’s going to affect you.
Over many years I have been lucky enough to work with many amazing people, from those with Fibromyalgia to those with various neurological problems. But, out of all the people that walk through my door with a fibromyalgia only diagnosis, I would say around 50%-60% actually turn out to be on the Hypermobility spectrum or have Ehler-danlos syndrome. Now for those folks with hyper lax tissue, life can become very difficult, very fast. With the change in collagen that the gene mutation in those with hypermobilty causes, and the fact that collagen is a hugely abundant and incredibly important tissue in the body, it brings about a lot of systemic problems. I’ve seen a lot of hypermobile folk in my career and I’ve seen some pretty amazing results that hard work, determination and a little consistency can bring about. Some of them even made the press like Kriss, Lauren and Lisa.
Pain is an important part of being as human it protects us from damage. It’s important to remember that things like degeneration, posture, leg length differences are very poorly linked to pain.
A study by Finan et al (2013) found that of 113 people with severe arthritis reported having low pain and those with mild arthritis reported having high pain.
I’ll tell you about my hatred of suits!
Every time I put on a suit my back hurts! I don’t suddenly become misaligned, nor does my posture become bad (in fact, I stand up straighter in a suit). I do, however, associate them with a certain restrictive feeling and a general sense of uncomfortableness.
Pain is not solely linked to damage. There are many other factors involved. If you wish to get out of chronic pain then we need to start doing more than we already are and thinking differently. How uncomfortable and painful does it feel when you sit in the waiting room of your doctors? Is it because they buy only the most uncomfortable chairs? Or maybe is it because we associate the doctors waiting room with sad news, sickness or just general panic?
We need to start thinking of pain in a different way!
I’m going to tell you a story. It’s going to open up how you perceive the world, it is going to make you question everything and maybe, just maybe, let you find your road to recovery…. Alternately, I’m about to really piss you off but I’m willing to take that risk! Read more
Last year I met Gayleen and despite all the pain she was in, I promised her within 6 weeks she would be flipping tyres across the studio floor, back pain free….
I like to set everyone new little milestones for their journey with me, yet there has always been one that has been set in stone for years…Tyre flipping! To this day I still love the reaction I get during a consultation, when I tell someone they will be flipping a huge tyre in 6 weeks. Some people don’t say anything, some think you’re mad, others see it as a challenge. Nonetheless, its brilliant to see someone once crippled with pain, do something they never thought they would do.
I met Gayleen last October and I thought rather than tell you about our journey, I’d ask Gayleen do it herself:
“I’m a 46 year old woman. Before I started working with Adam I had suffered from severe lower back pain for about 15 years. I was living on prescription painkillers. I was also diagnosed with fibromyalgia when I was 36. My body would ache from head to foot, particularly my hips, knees and elbows. I struggled to walk far, limped most of the time and was in constant pain. The other thing you should know about me is that I’m a massive Disney fan, especially Mickey Mouse. For years I had been pestering my husband about going to Florida on holiday, but as he rightly pointed out, I couldn’t walk very far so it wouldn’t really work, and with my back I couldn’t go on any of the rides. I’m also overweight and was secretly worried that I may not have fitted in the ride seats. So in October 2016 I started working with Adam. I was very sceptical at first, especially about the tyre flipping within 6 weeks. However within a few weeks, true to his word, he had me flipping tyres. I was so proud, I’ve showed everyone I know the video of me flipping that tyre! As well as not being in pain, I’ve also lost weight and body inches since starting to work out. I had made such impressive and rapid progress with Adam that in December 2016 my husband agreed to book Florida. I’ve just got back from a week in Florida and I had the time of my life. Not only did I walk for 53 miles during the week, but I kept up with my 2 teenagers, I fitted on every ride, I wasn’t in pain and of course I met Mickey Mouse. Not only did I feel fantastic, I also felt like a normal person, and it’s been a long time since I could keep up with a normal person. I honestly didn’t think I’d ever be out of pain. It may sound dramatic, but working with Adam has completely changed my life.”
Gayleen has been a brilliant client to work with and, as promised, has achieved what she set out to do. It’s like the old saying goes ” If you want something you’ve never had, do something you’ve never done”
If you’re currently just going through the motions and nothing is changing, stop! It’s obviously not working. Try new things; no one should have to live in pain.
Its only been a few weeks into 2017 and I feel I am definitely on the path to beating last years record of people returning back to work! Rachael has spent in total 6 hours at the studio, over around 3 weeks and has gotten rid of all pain, fatigue and POTS! This is after being diagnosed with Chronic fatigue syndrome and postural orthostatic tachycardia syndrome and suffering for 4 years. Read more
So… you may remember about 10 weeks ago I put out a post asking for volunteers. I had been busy designing an 8 week online programme designed for Ehlers-Danlos syndrome and associated connective tissue disorders. The whole programme was to be done via secure private video link wherein the volunteers needed to follow along with the videos exactly as they where presented. I received a huge response and I eventually ended up with around 30 volunteers, who where divided into Group A (who have now finished) and Group B (who started 4 weeks later)
Details on Group A can be found below. Group B are almost finished and have experienced even better results than group A, as I have been able to tweak things gauging off group A feedback, essentially running a version 1.1 at the same time. I will, when group B finish, post their results.
Aim
My aim for this programme is to see if “some” of the results I have working with individuals 1:1, could be attained without me every meeting an individual. Using the past experience of the countless people with EDS I have seen over the years, I put together an online video instruction programme. Obviously I wasn’t expecting miracles, but despite everything I ended up with a MASSIVE 90% success rate (success in this context means reduced fatigue, pain reduced down to nearly nil, stabilised pevlis’ and subluxations and dislocations reduced). However, all participants reported feeling better than when they started.
Out of the 30 people;-
*4 people failed to start the foundation exercises on time and were, as previously told they would be, removed from the trial.
*3 went silent, not responding to messages and I removed them from the trial
*2 missed the first session and were removed from the course.
The volunteers
The volunteers in general were very varied in symptoms and complaints, 3 member’s of group B started the course on crutches and whilst they have not yet reached the end of the programme, are already off them. Several of the participants suffered from POTS and I was even lucky enough to have a Regional Coordinator for the Ehlers-Danlos UK charity take part in the programme. For both groups I created 2 private Facebook groups so participants could get to know one another and also allow me to post the video sessions as required. I have attached some screen shots of our 8 week journey together.
Results
Group A – The results were far better than I could have imagined! In group A, 9/10 people reached the personal targets I had hoped for them and saw a huge reduction in pain and increased energy. Although 1 participant did not see the reduction in pain and increase in energy like we hoped, she did report feeling better than before she started and had the following to say during the post trial feedback.
“I have Improved posture, feel lighter and less weary when walking. No change I am aware of to general soreness or fatigue. Knees still slipping sometimes. Coat hanger tension still present and still having some trouble with the knot feeling though not as much as when it first flared up. Feet feel better than before I think, managed all the standing whilst cooking over Xmas without problems, did have a shoulder/ arm pain flare though.”
2 of the participants in Group A I had met whilst in Edinburgh performing workshops. Whilst I had already carried out individual assessments and knew of their individual cases, I did not use this prior information to tweak their programmes specifically and kept to the plan everyone else had.
Rachael, who I had met in Edinburgh, had this to say during the end of programme feedback;-
“In terms of the programme, I will go right back and start when I saw you in Edinburgh. At that time, I was in a great deal of pain in my neck, shoulders and all the way down to my fingers. I was in a hideous spiral of being given increasingly strong opioid painkillers which weren’t really helping me and ever increasing depression and despair. I was beginning to fear that nothing would ever get better. I was mobile enough to exercise , although it exhausted me and I had limited use of my hands and fingers. I still cannot write for any length of time. Within days (as you know) of beginning the foundation exercises about 90% of my pain disappeared. Mid way through the programme, i felt great! It has been lovely doing proper exercise again, especially exercise that I know is going to help me this time. Going through the programme has been a revelation, I didn’t realise just how dysfunctional my pelvis/back/shoulders were and how badly I was moving. Now I am aware of what I should be doing and I am getting ever stronger. My pain in my shoulders and neck has gone (though elbow, wrists and fingers are still sore but then I have been overdoing the typing) and I can feel the correct muscles working when i move. Once I get past this cold, i am hoping to begin running again!”
Andrea;-
“Hi Adam. Sorry for the late feedback! 1) Before the program I had daily lumbar spine pain which added to my mobility challenges. I was struggling to work part time and keep up with my 5 year old. my body was constantly clicking as my lower limps stabbed with pain at movement and rest. I had recently upped my pain killer dose to cope with the pain prior to starting the course. This had led to at least two full days having to be spent in bed recovering from day to day life. 2) Mid way through the program I found that the most notable visual change was my posture and knees not beng hyper extended for the first time in forever. I also had overall increased energy levels with less fatigue. Also when I did over do things and fatigue set in my recovery time was much quicker, needing less rest periods. 3) The increased energy has carried on and allowed me to not only have an improvement in my physical abilities but also less brain fog so more focused at work which has been commented on by my management. The program has given me a new lease of life by allowing me to better understand the functionality of my body in movement and how to self manage to reduce pain. My back pain is near enough gone (only issues have been one awkward heavy object and one fall down some stairs) I have also managed to reduce my pain medications to half what they were before the program. 4) I really think the foundation exercises should be carried out through out the program. I did stop them but then found I was getting a little lazy and the session days were a lot harder as my movements seemed to be slipping back into old ways, so I restarted them.!
Taryn had the following to say;-
“Before the programme I was getting tired very quickly. A morning out with the kids over the summer holidays would mean an entire afternoon to recover. I would become impatient and snappy for the remainder of the day. I had pain in my left knee on a daily basis as well as my left foot. It was constant, not crippling but just enough to bother me as I walk everywhere instead of driving (my preference as I can drive). My pelvis was unstable and painful. It had been aggravated during childbirth, especially with my second child. I had intense physio (from the womens health physio specialist intended only for maternity and post maternity but in my case they had to make an exception) nearly a year after giving birth to my youngest. The physio was over a course of 6 months on a weekly basis requiring a daily commitment to exercises. I felt a lot better but a year or more later my health started to slip again which is when I started to read more about my EDS and join forums for support. Eventually somebody recommended the Fibroguy!
My mobility was quite good, I walked an average of 8 miles a week or more and carried my little boy when he needed. Pushed the pram, carried scooters. Did the shopping. Basically pushed on as a lot of moms do. But I had low level pain constantly and it peaked in the evening. Mid way through the programme I could feel improvement. My knee pain had stopped as well as my foot pain. I felt stronger and my energy levels had improved. It was inspiring and motivating as the programme does require dedication and commitment even when you’re wiped out from your day to day chores and your little ones have nearly finished you off with their never ending needs and requests. )I loved the (slight) visible muscle tone improvement to my stomach ( I was flashing it around pre Christmas to my family but post Christmas that’s a different story!). My mobility is much better and I love the awareness I now have about which muscles I really should be using when going about day to day tasks. And trying to be very conscious about using these muscles, even if I only manage 50% of the time to do things right it’s a big improvement. I will continue to pin and press because the relief it brings is massive. I didn’t even realise how tight my calves were until the programme, they used to cramp and spasm when I stretched in the morning but now that’s gone. Thanks again Adam for including me in your trial programme!!”
Lydia had this say;-
Hi Adam, Firstly I just wanted to say thank you; thank you for your continued support, cheer leading and overall positive energy. It really made a difference. Before the programme, I was not very confident in my mobility and this is where I have seen the most difference! My pain levels seem to fluxuate a lot more so in the cold and wet weather, and I become more anxious about my mobility in the Winter because of this. Completing the foundation exercises is the thing where I saw most progress; I began to not only become more confident in exercise but I also became a lot more aware of my body. I was not aware just how unaware I was about the way I stood, walked, held my posture, hyper extended- and usually in a way of trying to protect my self from injury. By becoming more aware of these postures and over and under movement, it helped me to change and adapt my positioning of my body in everyday tasks, such as just walking and sitting. By continuing this, I felt my body use muscles that were never ‘awake’ and work harder, but relieved pain from elsewhere. I do wish we had kept the foundation exercises as mandatory (but as discussed, I went back and reintroduced these) because when we stopped them, I noticed a considerable difference in my strength and some old pains came back. I will continue these. For the first time, I began to actually enjoy exercise! My stamina has definitely improved, and I have noticeably seen the improvement in my fatigue and energy. I want to get up and look forward to completing stretches and pinning and pressing- something I first HATED yet not LOVE! The only thing I would have found more beneficial is that using a client with EDS- to see where possible hyperextension occurs. I found it really helpful when you used your girlfriend at the beginning and you showed her how to do each exercise. I really found this useful as it felt like you were here with me teaching me the exercises, because sometimes when you just did the exercise there were limited struggles for you, and it is harder to correct yourself. (I am not sure that made much sense?) Overall, I am really pleased with the programme and I feel very lucky to have completed it. I am feeling motivated to continue these, and I really want to (and need to ) sort my back spasms out, as these obviously limited me in my progression. I am awaiting seeing a back specialist because of a nerve being touched by the disk. (possible epidural, I have puot this off the last 2 times seeing him but now feel this may be needed as this is is the worst pain and most difficult to ‘push through’). I wonder if seeing a specialist would help in this so will keep you in the loop. Again, thank you Adam for all you have done, and I hope to stay in touch. Happy New Year! Lydia
Emily;-
“I started off the programme with wildly varying health – sometimes I would be bedridden and sometimes I would be completely ‘normal’. I had a lot of shooting pains as nerves got trapped in my slide-y joints, and I had a constant deep ache in my lower back. As early as two weeks in, it was gone. My fatigue was fading away and my body felt far more engaged. Now we’ve finished, my fatigue is so much better than it used to be; I still have less energy than an abled person but I don’t crash (as in, shut down and need to sleep immediately) nearly so much. In fact, I can’t think of a time when that has happened in the past couple of months! My joint pain comes and goes but it’s much less frequent and I feel so much better equipped to handle it and take steps to help fix it. My posture is really improved too. I’m incredibly grateful!”
All in all I am extremely pleased how this has all turned out. I had realised before we started, I was being very ambitious with this programme. Watching the group grow together and sharing in their achievements has made me very proud to work with them all. Yes, we had some brilliant results, but we also had little minor set backs that we tackled one by one; one participants plantar faciitis is almost gone! All in all, I couldn’t ask for a better group of volunteers and I thank them for their time.
So what is next? I will more than likely wait until group B finish and run the whole thing again one more time to iron everything out! And after that? Ill be calling the camera crew to get it filmed properly and having it as an online programme!
Well, where to start really? 2016 has been a very long and very productive year for me. I have worked on a 1:1 basis with 47 Individuals this year at the Newcastle studio, 24 of which have now returned back to work full time and 14 which have returned part time. Obviously I am both happy and extremely proud of all of the hard work my wonderful clients have put in over the last year and for those of them who have moved away to start careers again, I wish them all the luck in the world!!
More people than I care to remember over the years have suffered with POTS, especially those with Ehlers-Danlos syndrome. Simple interventions I have used with clients over the years has seen many clients return back to work and increased their standards of living. Let’s take a look at POTs, its mechanism and give you something to take away, use and hopefully help yourself. Read more
Hey guys, as you know I am always making minor changes to my programmes and every once in a while, I offer the programmes for free to test how well they work. I have a few projects lined up for next year and in particular, an Ehlers-Danlos project. As many of you know I can only help so much when it comes to the gastric and other problems that Hyper Lax connective tissue can cause, but when it comes to structural problems, mobility and pain I can help a lot. My programmes are well known and have even been in the press on a few occasions http://www.dailymail.co.uk/health/article-3528507/Woman-cracked-rib-sneezing-broke-ankle-wearing-heels-WEIGHTLIFTING-stop-joints-dislocating-times-day.html Read more
I am a Newcastle based Specialist who, over the past 5 years, has developed pain management programmes for those suffering with Fibromyalgia, Ehlers-Danlos syndrome, ME, Chronic Fatigue Syndrome (CFS). In 2010 I developed a programme that gave me my life back after an Incident in Afghanistan, left me a chronic pain sufferer. A few years later i found that parts of my own programme were transferable to many of those with invisible illnesses. Through research, constant adaption and years of trial and error. I have developed a pain management routine that can be adapted to each individuals personal needs. Which over the years, has seen many people take their lives back. Although I have helped many people over the years, there is no "cure" for chronic. Although my programmes can help you dramatically lower your pain and give you more of your life back. Until we find a cure you will always have your invisible illness, but much like my self, you can still reduce your pain and raise your standard of living. I still to this day get the Chronic cluster migraines, but having them once every few months has given me my life back, after suffering from them everyday. Lauren, who suffers with Class 3 Ehlers-Danlos syndrome and Fibromyalgia, went from dislocating multiple times a day and having practically immobile hips, to surfing in Mexico and wearing high heels again. Cheryl lost her life for over 15 years to fibromyalgia and cluster-tic; spending most of her days in bed, riddled with pain. She's now fighting back - boxing, circuit training and spending time with her family out of the house. Linda fell on a tent peg, injuring her coccyx and spent many months unable to walk or sleep properly. Today she is now back at work full time and practically pain free. Angela couldn't walk 100 meters without hip and knee pain caused by her fibromyalgia. Today she is doing shuttle runs in the gym and only suffers from very slight fatigue. Ellie suffered with fibromyalgia and Ehlers-Danlos syndrome so badly that it caused her to nearly drop out of University. After working together, she is able to get through each and every single day and is on her way to earning her degree.
tarted working with Adam I had suffered from severe lower back pain for about 15 years. I was living on prescription painkillers. I was also diagnosed with fibromyalgia when I was 36. My body would ache from head to foot, particularly my hips, knees and elbows. I struggled to walk far, limped most of the time and was in constant pain. The other thing you should know about me is that I’m a massive Disney fan, especially Mickey Mouse. For years I had been pestering my husband about going to Florida on holiday, but as he rightly pointed out, I couldn’t walk very far so it wouldn’t really work, and with my back I couldn’t go on any of the rides. I’m also overweight and was secretly worried that I may not have fitted in the ride seats. So in October 2016 I started working with Adam. I was very sceptical at first, especially about the tyre flipping within 6 weeks. However within a few weeks, true to his word, he had me flipping tyres. I was so proud, I’ve showed everyone I know the video of me flipping that tyre! As well as not being in pain, I’ve also lost weight and body inches since st
arting to work out. I had made such impressive and rapid progress with Adam that in December 2016 my husband agreed to book Florida. I’ve just got back from a week in Florida and I had the time of my life. Not only did I walk for 53 miles during the week, but I kept up with my 2 teenagers, I fitted on every ride, I wasn’t in pain and of course I met Mickey Mouse. Not only did I feel fantastic, I also felt like a normal person, and it’s been a long time since I could keep up with a normal person. I honestly didn’t think I’d ever be out of pain. It may sound dramatic, but working with Adam has completely changed my life.”
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