A 2026 state-of-the-art review from an international team of 11 researchers has updated the diagnostic framework for POTS. Here is what actually changed, what it means for people struggling to get diagnosed, and what the review still does not address.
One in four people with hEDS carries diagnoses of all three: hypermobile EDS, POTS, and MCAS. The overlap is well documented. The mechanisms are still being worked out. Here is what the research actually says.
If you have hypermobility or Ehlers-Danlos syndrome and you’re entering perimenopause, this is the comprehensive guide you’ve been looking for. From the menstrual cycle’s effect on joint laxity, through perimenopause chaos, POTS, mast cells, pelvic floor, bone health, and the full HRT picture, this post covers every aspect of how hormonal changes interact with a hypermobile body.
The EDS classification is being updated for the first time since 2017. The Road to 2026 initiative will publish new diagnostic criteria on 1 December 2026. Here is what the HEDGE study, the hEDS/HSD Criteria Review Study, and the Toronto Symposium findings mean for those with hypermobility and EDS.
If there’s one thing the COVID-19 pandemic taught us, it’s that the immune system is capable of doing some truly unexpected things. For a small
If you’ve landed on this page, there’s a good chance you’re in the middle of one of the most frightening pain experiences of your life.
Here’s something that most people recovering from Parsonage-Turner syndrome don’t get told. The nerve damage in your arm isn’t the whole story. There’s a second
If you’ve been diagnosed with Parsonage-Turner syndrome and you’re wondering what exercises you should be doing, you’ve probably already discovered that the standard advice is
If you’ve recently been diagnosed with Parsonage-Turner Syndrome, or you’re stuck somewhere in the middle of it wondering when things will start getting better, this
This article is part of our comprehensive guide to Parsonage-Turner Syndrome. If you’ve ever been told you have a frozen shoulder, a rotator cuff tear,
Have you ever had one of those days where your clothes feel like sandpaper, your hairbrush feels like it’s made of needles, and even a
You’ve probably seen the headlines. Ozempic is being described as a wonder drug. It’s in celebrity gossip columns, it’s on the news, it’s in your
TONMYA is the first new FDA-approved fibromyalgia drug in over 15 years. We break down the trial data, the criticisms, the cost reality, and what it means for you.
If you’ve spent any time in the EDS or POTS communities online, you’ll have come across the recommendation to try compression garments The need for
Everything you need to know about pregnancy with Ehlers-Danlos syndrome and hypermobility. Covering connective tissue changes, pregnancy outcomes, POTS, MCAS, local anaesthetic resistance, labour and delivery, postpartum recovery, breastfeeding, and the 2024 expert guidelines.
A comprehensive, evidence-based guide to pain medication for those with hypermobility and Ehlers-Danlos syndrome. Covering NSAIDs, paracetamol, gabapentinoids, amitriptyline, opioids, LDN, cannabis, local anaesthetic resistance, and why exercise consistently outperforms them all.
This article is part of our comprehensive guide to exercise and rehabilitation for hypermobility. It’s not uncommon for those with hypermobility and EDS to reach
This article is part of our comprehensive guide to living with fibromyalgia. It’s not uncommon for those living with fibromyalgia, Ehlers-Danlos syndrome, or another chronic
